Tuesday, February 5, 2019

The Baby I Can't Forget


I process my thoughts by writing. I wrote this years ago and was reminded of it now because of some of the recent public discussions regarding the beginning of life. I am reminded that real issues in life rarely fit into a campaign slogan or on a bumper sticker.



I think about him sometimes even though it has been more than twenty years and I only spent about twenty minutes with him.  I do not know his name or even know if he was male or female.  But I refuse to call a baby "It" and have arbitrarily elected to use masculine pronouns.


I was the resident on call in the Pediatric Intensive Care Unit (PICU).  A friend and fellow resident was on call in the Neonatal Intensive Care Unit (NICU) right next door.  At some point during the day, our paths crossed and she told me that there was a woman in Labor & Delivery, one floor up, who might deliver a premature baby that night.  Her dates were unclear but they thought she was somewhere between 22 and 25 weeks gestation.  She asked if I would go to the delivery with her if it happened, and I readily agreed.  Although I had no responsibility to be there, our group of residents often helped each other in stressful situations.  When you are scared to death and in over your head, it is nice to have company, even if your company is likewise frightened and inexperienced.  I assumed it would probably not happen that night and went back to caring for my unit full of kids with diabetic ketoacidosis, babies recovering from heart surgery, and victims of motor vehicle accidents and child abuse.


Sometime in the wee hours of the morning I was stat-paged to Labor & Delivery.  I ran into the delivery room and found my friend at the head of an infant warmer on which laid a tiny person.  He was just over or just under one pound, I can't recall exactly.  His heart was beating, albeit a bit slowly, and he was making some minimal, gasping attempts at breathing.  He was not completely blue but headed that way.  Three weeks may not sound like a big difference but, at that time, 22 weekers had no chance of survival and 25 weekers had a small, but real, chance of being basically normal children.  In between 22 and 25 weeks, and in between dead and normal, was every gradation of disability and relative risk that one could imagine.  We were not experienced enough to know where he was on that continuum.  He was obviously alive and trying to stay that way so we decided to proceed.



The first step was to establish an adequate airway and help him breathe by inserting a plastic tube into his windpipe so we could pump oxygen directly into his lungs.  As I was preparing to do this, the attending obstetrician, who I had not noticed beside me, quietly told me that the mother wanted "no heroic measures."  Physicians, ethicists, and clergymen could discuss this for days without reaching a consensus on what constituted heroic measures in this case.  Clearly, without intubation the baby was going to die soon.  We needed to decide something in seconds, maybe a minute if we were lucky.  Providing adequate ventilation seemed like a pretty basic step given the circumstances and choosing not to would have been an irreversible decision.  I also doubted my ability to intubate someone so small.  If I tried and could not do it, the question would answer itself.



I took the laryngoscope in my left hand and a 2.5 endotracheal tube in my right.  I gently pulled the baby's tongue and epiglottis forward to expose the vocal cords and slipped the tube through them.  I was surprised that it worked and when we started bagging oxygen into his lungs his heart rate and color improved.  Things were looking up.  This tiny person was alive!  Suddenly, I heard wailing and turned to see the baby's distraught mother being wheeled out of the room in her hospital bed.  The OB resident pushing the bed was scowling at me.  That was the first time that I realized that my actions were “heroic.”  Meanwhile, my friend and colleague was on the phone with the neonatologist.  He was on his way and wanted us to do our best to keep the baby alive until he arrived.  So with a mixture of triumph, confusion, and anger, I helped transport the baby down to the NICU.  The neonatologist was there and I was now superfluous so I slinked back to the PICU where I could review ventilator settings in peace.



It was only recently that I started to wonder why we were even called to the delivery.  Was the expectation that we would show up, do nothing, and watch the baby die?  If so, it seems like a terrible intrusion into a private and painful moment of a woman we did not even know.  And obviously our intervention was even more unwelcome.  Would it have not been better to not call us to come?



I went about my work in the PICU, checking on patients before the rest of the PICU residents and attending arrived, presenting the patients on morning rounds, and trying to get my paperwork done in hopes of heading home by mid-afternoon.  Sometime during the day, I heard that the baby in the NICU had died.  I was numb and confused and did not know whether this development was good or bad.



I wonder about his mother.  If I still think about the events of that night, she must be haunted by it.  I would like to talk to her but I do not even know her name or where she is from.  And what would I say?  "I'm sorry that I tried to save your baby"?  I hope she is not mad at me.  I hope she knows that I did what I thought was best.  But I really wonder about him.  Did he feel distress when he was gasping to breathe?  Did he feel discomfort when I intubated him?  If he could have told me, what would he have asked me to do or not to do?



If I could do it all over again and knowing what I know after more than twenty years in practice, I would wrap him up in some blankets, hand him to his mother, and express to her my sorrow at her loss.  Years later, a wise friend of mine asked me in relation to another event, "Did you do the best you could with the information you had available at the time?"  My answer would be an emphatic "Yes!"  I think that is all anyone can expect of any of us.